Bayfest

How to describe Bayfest. HOTTTTTTTTTTTTTTTTTTTTTTTTTTTTT!! My friends and I went there Sunday only so Reka could meet and great with Dora and Diego. So we munched first on gorditas, funnel cake, and snow cones. Wish I could of taking pictures but anyone who knows me knows I don't like the heat, so I was getting a little impatient. Exactly at 3pm we found the tent that Dora was at but they didn't have another showing until 3:30, (and on the website it said 3 figures). So we found a shade sat there for 30 minutes, then exactly at 3:25 I went to the line and they were rushing us. You could only take pictures with them no meet and greet like it said on TV but honestly I don't blame them in this heat and full body outfits. So here is the picture poor Reka was so hot and flushed.

Reka's New Equipment

OK now if any of you have insurance you know how long it takes to get special equipment sometimes. Well for 10 month I have been waiting for Reka's cough assist machine. It's a simple but heavy machine that pushes and pulls air out of her lungs to help her cough and move the mucus around, so that I could use her suction machine to get the mucus out. Now the suction machine took no time to get, but after 1 approval letter then 2 denial letters, then the final approval letter last month the cough assist was finally coming to us. I wasn't able to download the video on here so I will add the address so you can see it on youtube, and trust me this is only the beginning, next on our list is a bath chair, vibrating vest, pulse ox machine. Right now the cough assist is a rental, which insurance is paying almost $300 a month, if I remember right they are $3000-$5000 to purchase. I think so far insurance has paid over $10,000 for her equipment and other stuff like feeding bags, extension tubes, etc. etc. Will I actually found a web site of another family it has pictures of most of the equipment they will be needing. http://www.our-sma-angels.com/matthew/equipment.htm
Reka's youtube account is http://www.youtube.com/user/lzhang1076 you can see all the little videos I've done with her and the new two ones her equipment tutorial, and her using the cough assist machine, which is poor quality because I had to hold the camera between my chin and chest.