Just hanging

Will she was dancing then when I started video taping her she stopped. Yesterday I was busy making calls to SSI so I could get traditional insurance so there wont be any delays when we go to Dr. when she needs test run. Also called her pediatrician to get a referral so she could have physical and occupational therapy 3-4 times a week how lovely. And last her neurologist which luckily is in 2 weeks and not 2 months love her genetics Dr. he has been working miracles for her. Luckily she doesn't have type I SMA it is type II. In general she will never walk, she will need assistance in little things we take for granite like changing cloths, taking a bath, you know basic stuff. Luckily they do have a longer life span up to 20-40 yrs compared to 1-5. I actually met a lady on youtube who is 26 married and is doing great she can even put on make up. Will just keep praying for her and if you ever get a chance and want to help her and other kids out make donations at MDA you know with the Jerry Lewis guy or when you go to the gas store and they have those shamrocks donate a couple of dollars. I also have an account with youtube where you can see more videos of her the address is http://www.youtube.com/lzhang1076 Thank you and until next time god bless.