Update

Just thought I would give everyone who reads this a small update of Reka and myself. Reka was sick all month of January, numerous amount of doctor and ER visits, but her lungs were always clear and no infection. My opinion, allergies, sinuses, who knows. Next week we are going to Houston 1.) to see the family and 2.) Pulmonologist appointment. Unfortunately, the one here in Corpus decided to leave in October, (but stayed an extra month) and went to Maryland. Now the closes one was Houston, but with the help of my friend because of my lack of internet skills she found a list of numbers to Pulmonologist in San Antonio. Thank god called the list and found only one that knows and takes children with SMA. YYYYYYEEEEEEEAAAAAA!!!!! It's only a two hour drive compared to four. Now the Pulmonolgist department here is suppose to get a new doctor in April, but the question is does he know anything about SMA? If not looks like I'll be applying for assisted living in San Antonio, but luckily I do have a friend that lives about 45 minutes away, my family would only be 2 hours away, and my in laws would only be two and a half to three hours instead of four. Which in my opinion would be great, I love San Antonio, its close enough I could visit more often then when I lived in Houston. So I'll be waiting for that call from the doctor to tell me, I'm hopeful he will but such as life. I'm sure your asking why would I move to another city just for a doctor, because this is THE doctor for children with this disease. Read about it if you want more information. As for me don't do much other then take care of my daughter, would love to work but cant find a job that will let me have winters and summers off, and sick live for my daughters care. On another note Reka's dad is coming back to America, no luck in the job district. At least he will be able to see her more often. Sorry no pictures, but I am going to try and get my section 2 of my 3 part on daily life with Reka. Hope all is well with everyone and God Bless!